EORTC Policy on Data Sharing
Slovenian Cancer Registry – data usage information
“Questions and Answers on the European Health Data Space” (EHDS)
Scientific paper – “Decision Support Systems in Oncology”
Presentation – Health-Related Quality of Life (HRQoL) and Patient-Reported Outcome Measures (PROMs) in oncology
ESO podcast – Health-Related Quality of Life (HRQoL) and Patient-Reported Outcome Measures (PROMs) in oncology
EORTC questionnaires to assess quality of life (QOL) in cancer patients and survivors
Cancer Registry of Norway
Systematic review of physical function patient-reported outcomes (PROMs) among adolescent and young adult (AYA) cancer survivors
Report – Quality of care as perceived by patients. PROMs and PREMs indicators
European Cancer Organisation (ECO) policy action report – “Time to Accelerate: The Use of Patient-Reported Outcome Measures in European Oncology”
IARC/GICR cancer registration e-learning series
Website – European Network of Cancer Registries (ENCR)
iPAAC Framework for the implementation of Patient Reported Outcome Measures (PROMs) in routine cancer care
Example of a Hospital-Based Cancer Registry
IARC Technical Publication on Planning and Developing Population-Based Cancer Registration
ENCR (European Network of Cancer Registries) Recommendations 2023 on Standard Dataset
iPAAC – Mapping data sources available for linkage with registry data
Overview of European Network of Cancer Registries (ENCR) recommendations
CCI4EU online course. Data Sharing and Data Exchange.
