Systematic review of physical function patient-reported outcomes (PROMs) among adolescent and young adult (AYA) cancer survivors
Report – Quality of care as perceived by patients. PROMs and PREMs indicators
European Cancer Organisation (ECO) policy action report – “Time to Accelerate: The Use of Patient-Reported Outcome Measures in European Oncology”
OECI Excellent Practice – Recognising patient expertise, and evaluating their involvement in care processes
OECI Excellent Practice – Shared Decision-Making (SDM) as a collaborative approach in cancer care
iPAAC Framework for the implementation of Patient Reported Outcome Measures (PROMs) in routine cancer care
Example of a Hospital-Based Cancer Registry
IARC Technical Publication on Planning and Developing Population-Based Cancer Registration
ENCR (European Network of Cancer Registries) Recommendations 2023 on Standard Dataset
Review article on best practices for developing a Data Management Plan (DMP) in clinical studies
Standard Operating Procedure (SOP) for applying for approval and start-up of clinical trials
Competence assessment and career guidance for researchers – example of career assessment matrix
Contact points for patient associations that involve expert patients in research
iPAAC – Mapping data sources available for linkage with registry data
Therapeutic Education: An Opportunity to Improve My Quality of Daily Life
Educational nursing capsules for professional development within cancer care
Cancer Survivorship Advanced Nurse Practitioner (ANP) – Nurse-led Clinic Protocol
TSJCI Cancer Nurse Council Terms of Reference
Example of a Terms of Reference for a Cancer Survivorship network
Example of a 5-year strategic development framework for a Cancer Institute within a CCI