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CCI4EU theme: Outcome research

Patient-reported Outcome Measures (PROMs) – what they are and why they matter

Cancer outcome research – what it is and why it matters

Podcast on involving primary care in research

Example of a European life sciences Research Infrastructure (RI)

Template for contracts between pharmaceutical companies and academic centres

Networks of interest in oncology research

Research procedure – health research projects

Guidelines: Research ethics and research integrity in medical and health research projects

Good practice in phone, eConsultation and video consultations

Good practice in the use of Non Face-to-Face (remote) care channels

EORTC Policy on Data Sharing

Slovenian Cancer Registry – data usage information

“Questions and Answers on the European Health Data Space” (EHDS)

ELIXIR – European life sciences infrastructure

Scientific paper – “Decision Support Systems in Oncology”

Presentation – Health-Related Quality of Life (HRQoL) and Patient-Reported Outcome Measures (PROMs) in oncology

ESO podcast – Health-Related Quality of Life (HRQoL) and Patient-Reported Outcome Measures (PROMs) in oncology

EORTC questionnaires to assess quality of life (QOL) in cancer patients and survivors

Cancer Registry of Norway

Systematic review of physical function patient-reported outcomes (PROMs) among adolescent and young adult (AYA) cancer survivors

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