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Topic: Data

Guidance for Institutional Review Boards and Clinical Investigators

Real World Data in Oncology – Unicancer

The Cancer Trials Ireland Podcast

Overview of ISBER Best Practices Recommendations 2018

Common Minimum Technical Standards and Protocols for biobanks dedicated to cancer research – IARC Technical Publication No44

IARC Learning resources – biobanking

Article: “An introduction to starting a biobank”

Procedure – Creation of a specific research biobank

Procedure – Creation and organization of a general research biobank

Setting up a Cancer Centre: A WHO–IAEA Framework

Health Economics Analysis Plan for the SCIENCE study (Stem Cell therapy in IschEmic Non-treatable Cardiac diseasE)

Good practice in the use of Non Face-to-Face (remote) care channels

EORTC Policy on Data Sharing

Slovenian Cancer Registry – data usage information

“Questions and Answers on the European Health Data Space” (EHDS)

ELIXIR – European life sciences infrastructure

Scientific paper – “Decision Support Systems in Oncology”

Presentation – Health-Related Quality of Life (HRQoL) and Patient-Reported Outcome Measures (PROMs) in oncology

ESO podcast – Health-Related Quality of Life (HRQoL) and Patient-Reported Outcome Measures (PROMs) in oncology

EORTC questionnaires to assess quality of life (QOL) in cancer patients and survivors

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