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Topic: Governance

iPAAC Framework for the implementation of Patient Reported Outcome Measures (PROMs) in routine cancer care

Example of a Hospital-Based Cancer Registry

IARC Technical Publication on Planning and Developing Population-Based Cancer Registration

Review article on best practices for developing a Data Management Plan (DMP) in clinical studies

Standard Operating Procedure (SOP) for applying for approval and start-up of clinical trials

Vall d’Hebron Research Institute Strategic Plan 2021-2025

Patient relationships – OECI Excellent Practice example from Institut Paoli-Calmettes

iPAAC – Mapping data sources available for linkage with registry data

Overview of European Network of Cancer Registries (ENCR) recommendations

Example of a Terms of Reference for a Cancer Survivorship network

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Example of a 5-year strategic development framework for a Cancer Institute within a CCI

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CCI4EU online course. Data Sharing and Data Exchange.

CCI4EU online course. Patient empowerment and patient-centered care.

Clinical trials – educational materials for patients

Guidance on developing a Memorandum of Understanding

Memorandum of Understanding – example

Memorandum of Understanding – template

Nature Editorial – Scientists need more time to think

Example of a Data Transfer Agreement

Guidelines for developing a Memorandum of Understanding for scientific research cooperation

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Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union. Neither the European Union nor the granting authority can be held responsible for them